For a while now I have had this thing that I thought was old age creeping up on me. Tiredness, fatigue, headaches on waking and feeling generally slow. Feeling like I couldn’t drive for more than half and hour. Really struggling with everything. I was tested for mysterious diseases and as I have Hashimoto’s disease, my thyroid (which is mostly good on its own atm) and zero. Nothing in the blood work to explain it.
We had suspected sleep apnoea as I snore and it’s been getting worse. My partner noticed choking in the night and I had too. I was put on the waitlist at the Canberra Hospital to see the sleep clinic people. I was told by the hospital that I had been triaged to a six month appointment. It’s been 14 months and I still haven’t got an appointment date.
So there is a wait list for the wait list for a sleep study. I guess the ACT government doesn’t advertise the first wait list just the one when you get on the waitlist.
I get insomnia and restlessness and I had been sleeping less and less. I put this down to getting older.
Anyway, the chemist had a 50 per cent off deal on sleep studies. You take a machine home and wear it for the night. It measures your oxygen levels, your breathing etc. I had the worst night’s sleep that night and had some insights into my sleep besides the suspected apnoea. I was staying up later and later watching Netflix. I played with my phone and if I woke up I’d pick up my phone until I felt tired again and I was drinking caffeine before bed. I realised that these were bad habits that were affecting what little sleep I was allowing myself.
Then I got the results back. I thought there would be none due to the appalling sleep but there were. I had sleep apnoea. Moderate but considering how badly I had the machine on, I was surprised that there were any readings at all. My oxygen lows were into the 80 per cent and I had around 20 obstructions and narrowing of airways per hour. Now wonder I was feeling mentally and physically low.
I’m still waiting for my appointment at the hospital as I have a range of sleep issues and the chemist tests don’t pick up the neural issues-when your brain forgets to tell you to breathe.
I decided to trial the ACAP machine. This is a new generation machine apparently as it doesn’t blow constant air, but ramps up the pressure when it feels a narrowing or stop breathing thing. I am trialling this machine. I don’t find it obtrusive. It’s not noisy at all. I have a nose only mask and it’s a soft silicone so no hard bits. At times I think I forgot to put it on but when I touch my face it is there. Sometimes I think it’s not working and lift the mask off and air blows all over me. Anyway, I manage to wear it for 7.5 hours on average. Apparently that’s good. My obstructions have dropped to 4 to 5 per hour.
Before I started the trial I changed a few habits that I had developed. Only decaf tea after about six in the evening or a milo/hot chocolate. I turn Netflix/DVD watching off before 10.30. I don’t look at my phone in bed and I try to read a paper based book for half an hour before I sleep. This has worked for me too, mostly. I still get some insomnia and go for a walk around the house. I suspect the waking up is me choking at night and the machine has woken me when it is blasting me with air to open a blockage or to make me breathe. I’m hoping the sleep specialist if I ever get to see one will know more about that.
But best of all, I feel great. I am so energetic and mentally alert. It’s like I’ve dropped ten years in a week. I feel so much better I feel that I can cope better with the bad knees (also wait listed for an appointment for them!) and the other dramas life throws at us. Just getting more air at night has made such a difference.
I really, really can’t believe how good I feel.
I’m so happy with the result. Now if I could tackle the insomnia (which has improved) and the restlessness (mmm) my sleep would be great.
Now I just have to find the money to buy the machine when the trial is up.
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